Educational Advances Increasing Perceived Self-Efficacy in Short Bowel Syndrome Utilizing Social Media

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Short bowel syndrome is complicated and requires complex treatment with a multidisciplinary team. The project Educational Advances to Increase Self-Efficacy in Short Bowel Syndrome Utilizing Social Media incorporates an established Facebook short bowel syndrome support group and the development of a web-based site in assisting caregivers who are having challenges providing care for their child with the diagnosis. The evidence suggests many patients and parents may feel overwhelmed with the responsibilities and medical requirements for this specific diagnosis as most patients require medical devices such as a central line, gastric tube, and/or surgical interventions consequently requiring an ostomy. Key terms include central line, social media, parenteral nutrition, absorptive capacity, short bowel syndrome, infection, Facebook, gastric tube, intestinal resection, ostomy, and self-efficacy. The goal of this evidence­ based project was to improve perceived self-efficacy through patient and parent/caregiver education. The project accomplished the goal in assisting parents and patients in transitioning home by creating a web resource providing evidence-based practices for common concerns and issues faced by the population with short bowel syndrome. An additional goal was to increase the caregiver knowledge base in caring for the patient with short bowel syndrome by the use of educational resources on the website. The Facebook support group hosted the website for an allotted time. Participants who used the website were asked to complete a pre-and post-General Self-Efficacy Scale (Appendix D) survey regarding perceived self-efficacy, usefulness, helpfulness, and the website’s benefit. The survey results were utilized to evaluate the website’s efficacy. The budget encompassed the cost of designing the website, survey, and maintaining the website. As the evidence has shown, the objectives were met, although budget changes were made. The feasibility of implementing the project was reasonable and completed without difficulty. Key findings include an increase in perceived self-efficacy after utilization of the website based on data analyzed from the pre and post-test.
Short Bowel Syndrome, Social Media, Spring Arbor University, Lynn Willis-Carr